Hypereosinophilic Syndrome is a rare blood condition. Our goal is to help connect the HES community.
We can say “Hypereosinophilia.” Can you?
We are Tara and Jada. We are members of an exclusive club, and we are on a mission.
We have been diagnosed with a rare auto-immune condition called Hyper Eosinophilic Syndrome, or “HES.” HES has few treatment options, but researchers are learning more every day.
Our mission? Connect the community of HES patients and medical experts, provide support, and help find a cure in our lifetimes.
Recent Blog Posts
September 20, 2015 |
A month ago, I visited NIH for my regular infusion and was told that Mepolizumab was now being offered through subcutaneous injection, meaning instead of receiving the drug via an intravenous drip, I would receive three shots. I was asked if I wanted to be the first person to test it out! Of course I was a bit anxious but the thought of being the first person excited me so I said “Yes.”
December 1, 2014 |
Thanks to all my family and friends who donated to my fundraiser for the Children’s Inn at NIH. Last...
January 8, 2014 |
Participants are being recruited for a new clinical trial of dexpramipexole, a potential treatment for...
November 3, 2013 |
Today my story was news at NIH. The October/November issue of the NIH Clinical Center magazine was released, and...